You’ll always know what’s going on with our organization.
Just bookmark this page and check it often for the latest programs and events.
We are working to update our calendar to reflect the 2024 schedule. Until then, feel free to click on the button below to look at our calendar at a glance.
Educational Dinner
Join us for an educational dinner in Idaho Falls! We will be joined by Common Factors® Advocate, Krissy - a caregiver to her son with Hemophilia A.
We are working diligently to identify a restaurant now.
Event Sponsored by CSL Behring
Educational Dinner
Topic: Reframe your Mindset
Description: An interactive workshop sponsored by Genentech and developed in partnership with University of Pennsylvania. Participants will explore how to change negative thinking patterns during times of change. The session includes role play and tips to apply the learnings.
Event Sponsored by Genentech
Educational Dinner
Topic: Gene Therapy Jeopardy: An Interactive Game Featuring the Underlying Principles of Ongoing Gene Therapy Research
Description: Expand your gene therapy research knowledge with this fun new experience from BioMarin to make the science behind gene therapy research memorable and entertaining. Whether you’re already a whiz or are just starting to explore, you and your friends can learn together and earn points to win bragging rights. Will you become the next Jeopardy! Gene-ius? Join us to find out!
Event Sponsored by BioMarin
Deadline: Monthly Photo Contest Submission
Our programming calendar still has many virtual events and we miss seeing you and hearing about all of the things you and you family are up to! Please join in on the fun and provide us with some photos of your activities!
Each month THE CHAPTER will
send out a new theme to incorporate in your photos!
select a random photo to receive a gift card. Live drawing will take place on the first business day following the end of the month through Facebook Live (no need to be present to win)
Each month, YOU will
learn the theme of the month (found on social media and on the monthly event email digest).
take photos of you (and your family) having fun during your daily routines or special trips and activities
Submit your photo by the end of the month using the form below or texting Marlyn (1 photo per person with a maximum of 4 per family)
have fun!
All photos collected could be used for future marketing and chapter calendar publications.
If you have any questions, please contact us!
