On June 1st, 2026, the federal Centers for Medicare and Medicaid Services (CMS) released its long-awaited rule providing guidance to state Medicaid programs on how to implement the Medicaid work reporting requirements and eligibility limits enacted last year as part of HR 1, the One Big Beautiful Bill Act. 

If you’re interested in living an altruistic lifestyle while still watching your wallet, check out this list of unique things you can donate besides money.

Today we’re going to discuss everything you need to know about Memorial Day: where it came from, why it’s important and how you can honor our nation’s heroes today.

On May 22nd, Representatives Julie Johnson (D-TX-32), Joe Wilson (R-SC-02), and Rep. Sarah McBride (D-DE-At Large) introduced the Fostering Effective Diagnosis and Treatment for Underserved Populations with Bleeding Disorders Act (FED UP with Bleeding Disorders Act, H.R. 8794), federal legislation introduced in the United States Congress aimed at improving diagnosis, treatment, and research equity.

When it comes to living a positive lifestyle, our habits either make or break us. If you’re interested in starting a habit that you can actually stick with, check out these useful tips.

Jacob Murdock, current senior executive director of the Nevada Chapter of the National Bleeding Disorders Foundation (NBDF Nevada), will also assume leadership of the organization’s Nebraska chapter, NBDF Nebraska.

You want to make a difference, but aren’t sure where to start without money. Fortunately, we have ideas to help you donate to charity without breaking the bank.

The Idaho Chapter of the National Bleeding Disorders Foundation (NBDF Idaho) and the Snake River Hemophilia & Bleeding Disorders Association (Snake River) have announced plans to merge, forming a single statewide organization that will operate as NBDF Idaho within the National Bleeding Disorders Foundation’s national chapter network.

These books inspire the altruistic lifestyle and show anyone can make an impact on the world. Let’s explore each of them more in depth.

When things are busy, wellness often takes a backseat to our presumed priorities. Check out a few ways to bring your personal health back to the forefront of your life.

The National Bleeding Disorders Foundation (NBDF) is proud to announce that Maria E. Santaella, PhD(c), MSN, RN-BC, CPHON, senior vice president of research strategy, has been named editor in chief of Bleeding Disorders Care & Practice.

For seniors, volunteering is the perfect chance to use extra time to make a difference in the community. Check out these positive reasons for seniors to volunteer.

The National Bleeding Disorders Foundation, a leading U.S. organization dedicated to improving care for people with bleeding disorders, has announced its 2025 NBDF-Takeda Clinical Fellowship Awardees: Deeksha Katoch, MBBS, and Peter Zhao, MD.

This month, you can try some of these activities to support your community.

Federal: 

Strong Support for FY27 Funding for Federal Bleeding Disorders Programs 

Today, we’re going to go through some simple, tangible ways you can help put an end to homelessness in your community.

The National Bleeding Disorders Foundation (NBDF) is alerting the community to updated information from Takeda Pharmaceutical Company regarding the discontinuation timelines for HEMOFIL® M and RECOMBINATE®, two therapies used to treat hemophilia A, first announced last year.

The Neil Frick Resources Center (NFRC) is excited to announce new 2026 scholarship opportunities available to the bleeding disorders community.

If you’re looking for cool ways to donate your gently used items, check out this list of things you can and should donate, and some unique ideas of where to give them.

CSL Behring, the biopharmaceutical company behind the hemophilia B gene therapy HEMGENIX ® (etranacogene dezaparvovec-drlb), announced on March 17, 2026, a temporary global stockout of the therapy. This disruption means that some individuals in countries where HEMGENIX is commercially available may experience delays in accessing treatment.

The National Bleeding Disorders Foundation (NBDF), a leading nonprofit supporting people with bleeding disorders, is proud to congratulate Matthew Delaney, government relations manager, on being named to City & State New York’s 2026 Albany 40 Under 40, an annual list recognizing rising stars in New York State government, politics, and public service.

A Personal Connection to the Bleeding Disorders Community

Federal:  

NBDF Wraps Up Another Successful Washington Days

If you’re still not sure what you’re doing over spring break, check out these ideas for how you can have fun and give back.

This National Women’s History Month, you can honor women who have strived to make a difference in the world, along with women in your community today.

Did you know you can give back by supporting small businesses? Here are some hows, whys and benefits of supporting small businesses for your altruistic lifestyle.

The National Bleeding Disorders Foundation (NBDF) is pleased to announce a new matching grant partnership with Save One Life that will double the community’s impact for children living with bleeding disorders, including hemophilia A, hemophilia B, and von Willebrand disease in developing countries.

Pathway to Cures (P2C), the venture philanthropy fund of the National Bleeding Disorders Foundation (NBDF), is pleased to announce the appointment of Michael Recht, MD, PhD, MBA, as chief medical and scientific advisor.

BioMarin Pharmaceutical Inc. has announced that it has decided to pull the hemophilia A gene therapy ROCTAVIAN (valoctocogene roxaparvovec-rvox) from the United States market.

The month of February reminds us to seek out stories and histories, and recognize the significance of black history. Take these ideas to heart and practice them as you honor Black History Month.

The National Bleeding Disorders Foundation (NBDF) mourns the passing of Lynn M. Malec, MD, MSc, a physician, researchers, and champion of the bleeding disorders community.

Employers are looking for more than just a good employee; they want someone with experience, good people skills and who stands out from the crowd. Make your resume jump out by adding volunteer experience.

This Valentine’s Day, give love to others by living an altruistic lifestyle and giving back. Try out some of these Valentine’s Day tips to truly see love blossom in your life.

FY 2026 Funding Update  

Last week, the House of Representatives passed the final fiscal year (FY) 2026 appropriations bills. This includes the FY26 Labor, Health and Human Services appropriations bill, which provides funding for the federal health agencies. There were big wins in the bill for the bleeding disorders community, including:  

FY 2026 Funding Update  

Last week, the House of Representatives passed the final fiscal year (FY) 2026 appropriations bills. This includes the FY26 Labor, Health and Human Services appropriations bill, which provides funding for the federal health agencies. There were big wins in the bill for the bleeding disorders community, including:  

With the deep cold, consistent darkness and long hours spent indoors, winter can be a pretty difficult season to get through, and it can often affect our mood.

With the new year comes new goals, new ambitions and new horizons to set our eyes on. Last year is a thing of the past; now, we’re ready to accomplish something bigger and better in 2026.

The National Bleeding Disorders Foundation (NBDF) is launching Educate to Elevate, a multi-year initiative to raise public awareness, educate communities, and improve healthcare access for individuals with bleeding disorders. 

The campaign features celebrity advocates including Melora Hardin, Amy Jo Johnson, Jonathan Frakes, Jason Ritter, and Greg Grunberg, alongside medical experts and people living with bleeding disorders, amplifying the experiences and challenges faced by people who live with these disorders every day.

Why This Matters

The National Bleeding Disorders Foundation (NBDF) offers multiple funding opportunities for bleeding disorders researchers across all career stages and disciplines. Through the Judith Graham Pool Postdoctoral Research Fellowships, the Sanofi-sponsored Career Development Award, the Takeda-sponsored Clinical Fellowship, and the Excellence Fellowships, NBDF’s grant programs support diverse research needs, including basic science, clinical projects, and innovative technologies.

After decades of research during which gene therapy was considered a distant goal, FDA-approved gene therapy options for hemophilia are now available in the United States. As these therapies enter real-world clinical practice, patients and care teams are navigating new access and coverage considerations that differ from more traditional treatment models.

The National Bleeding Disorders Foundation (NBDF) has announced the recipients of its 2025 research grant cycle, providing new research funding through its the Judith Graham Pool Postdoctoral Research Fellowship,  Excellence Fellowships in Social Work, Nursing, and Physical Therapy, and the Sanofi-sponsored Career Development Award. This year’s cohort reflects the full breath of bleeding disorders research, spanning basic science, clinical investigation, and qualitative studies led by nursing, social work, and physical therapy professionals.

Federal Updates: 

House of Representatives Reintroduces HELP Copays Act 

If you want to make a difference in 2026, make giving a part of your New Year’s resolutions. Here are some ideas for how you can create resolutions that give back.

The National Bleeding Disorders Foundation (NBDF) has joined with World Federation of Hemophilia (WFH) with issuing a joint statement on a severe adverse event with marstacimab rebalancing agent for hemophilia (Hympavzi®). NBDF believes it is important for the community to be informed as quickly and thoroughly as possible about all adverse events that can impact people’s informed decision-making regarding their treatment. As Pfizer shares more information regarding their ongoing investigation into this event, NBDF will continue to update the community.

Santa Claus is a staple of the winter season, and has been for a very long time. But what do we really know about this jolly legend? Today, we’re going to find out.

The National Bleeding Disorders Foundation (NBDF) is delighted to announce that Luke Luckey of Manchester, Michigan, was selected as the recipient of the 2025 Kevin Child Scholarship (KCS). The Child family selected Luke as this year’s KCS award recipient from among more than 20 applicants.

As you prepare for all of the gifts, parties and dinners headed your way this season, here are some ideas for how to decrease stress during the holidays.

Hemab Therapeutics recently announced positive results from a Phase 2 clinical study of their investigational subcutaneous therapy sutacimig. 

Sutacimig is a laboratory-engineered bispecific antibody being developed as the first-ever prophylactic treatment for individuals with Glanzmann thrombasthenia (GT), one of several diseases the company is looking to ultimately target with this investigational, sub-Q therapy. 

On December 4, 2025, Representatives Kean (R-NJ), Barragán (DCA), Miller-Meeks (R-IA), Auchincloss (D-MA), Fitzpatrick (R-PA), and Watson-Coleman (DNJ) reintroduced the Help Ensure Lower Patient (HELP) Copays Act to make necessary and life-saving prescription medications more affordable for patients with rare, serious, and chronic conditions such as hemophilia, von Willebrand disease, and other rare bleeding disorders.

CSL recently announced the publication of five years’ worth of data from their HOPE-B clinical trial program, which has been investigating the company’s hemophilia B gene therapy Hemgenix® (etranacogene dezaparvovec).