Jamie Lott [jamie.lott@bayer.com]
Michael Krieger [michael.krieger@bayer.com]

Bayer has been providing products and services for people with hemophilia A for over 27 years. Recently, Bayer partnered with the World Federation of Hemophilia to help 5000 patients in countries with insufficient access to care by donating 50 million units of factor, training and education for healthcare professionals in 60 countries. Bayer has 3 products for patients with hemophilia A, including an extended half-life product. Access Services by Bayer provides patients with co-pay assistance, free sample product and free product for patients with a gap in insurance coverage.

Company Links: My Journey to Jivi | Jivi Co-Pay Support | Information about Pharmaconkinetics (PK) | Find your local Rep | Kovaltry

Email Jamie Lott    Email Michael Krieger

Tamara Pineault
[tamara.pineault@cslbehring.com]

CSL Behring is a global biotherapeutics leader driven by its promise to save lives. Focused on serving patients’ needs by using the latest technologies, we develop and deliver innovative therapies that are used to treat coagulation disorders, primary immune deficiencies, hereditary angioedema, respiratory disease, and neurological disorders. The company’s products are also used in cardiac surgery, burn treatment and to prevent hemolytic disease of the newborn. CSL Behring operates one of the world’s largest plasma collection networks, CSL Plasma. The parent company, CSL Limited (ASX:CSL;USOTC:CSLLY), headquartered in Melbourne, Australia, employs more than 25,000 people, and delivers its life-saving therapies to people in more than 70 countries. For inspiring stories about the promise of biotechnology, visit Vita CSLBehring.com/vita and follow us on Twitter.com/CSLBehring.

Company Links: Company's General Website | IDELVION | AFSTYLA | HUMATE-P

Email Tamara Pineault

Anthony Marshall
[marshal.anthony@gene.com]

For more than 40 years, Genentech has been following the science, seeking solutions to unmet medical needs. As a proud member of the Roche Group, Genentech makes medicines to treat patients with serious medical conditions. Genentech is headquartered in South San Francisco, California.

Company Links: TreatHemA| GenentechSignup.com

Email Anthony Marshell

Lori Hopp
[l.hopp@kedrion.com]

Kedrion is an international company that collects and fractionates blood plasma to produce and distribute plasma-derived therapeutic products for use in treating serious diseases, disorders and conditions such as hemophilia and immune system deficiencies.

Kedrion was established in Italy in 2001, but the roots of the companies from which it was born stretch back several decades in the production of blood and plasma derived products.  A primarily family-owned business, it places a high value not only on the welfare of those who benefit from its products but also on the people and communities where it operates.

Company Link: Company's General Website

Email Alan Leerkamp

Matthew Chapman

[mvhp@novonordisk.com]

Novo Nordisk was founded in 1923 and headquartered in Denmark. Our purpose is to drive change to defeat diabetes and other serious chronic diseases such as rare blood, obesity and endocrine disorders. We do so by pioneering scientific breakthroughs, expanding access to our medicines and working to prevent and ultimately cure disease. Your local representative, Danielle, has worked in the bleeding disorders community for nearly 10 years; previously working for the Washington State chapter. She is passionate about empowering patients to advocate for themselves to get the best care possible. Danielle has a special love for the ultra-rare bleeding disorder patients! Her mission is to educate patients & caregivers about symptoms which may hopefully lead to a diagnosis. When she’s not working, you can find Danielle with her dog Kip outside exploring all the wonders that the Pacific Northwest has to offer!

Company Links: Company's General Website | NovoSeven | Rebinyn | Esperoct | Tretten

Email Danielle Mueller Durham

Ken Macomber
[ken.macomber@octapharma.com]

In 1983 Wolfgang Marguerre founded Octapharma which led to the pioneering and patenting of the solvent/detergent (S/D) viral inactivation process. This process is still used today in the manufacturing of most factor products. Octapharma is the largest privately-owned human protein products manufacturer in the world. Octapharma, Independent, flexible, patient-care focused. Octapharma has 45 subsidiaries, 6 manufacturing sites, 5 research and development facilities. They have more than 7000 employees around the world including over 2000 in the United States. Octapharma has 6 human protein products currently available in the United States. Octapharma’s Coagulation Products are NUWIQ for Factor VIII deficiency, WILATE for VWD and Factor VIII, FIBRYGA for Congenital Fibrinogen Deficiency (Factor 1) and OCTAPLAS- pooled Fresh frozen Plasma for TTP, Liver & Cardiac patients. Octapharma, for the safe and optimal use of human proteins, prides itself in continuing investment in research and new product technology. Octapharma, advancing human lives…. It’s in Our Blood.

Company Links: Company's General Website | NUWIQ | WILATE

Email Harp Maan

Patty Eastin
[patricia.d.eastin.pfizer.com]

For more than 20 years, we’ve been standing with the hemophilia community and listening to what it’s members have to say. We will be standing firm and listening carefully for many more years to come Pfizer Patient Affairs Liaisons: The Pfizer Patient Affairs Liaison program was created to support the hemophilia community by connecting patients and caregivers with Pfizer Hemophilia tools and resources. Fun Fact: Using deep-tank fermentation, Pfizer is successful in its efforts to mass-produce penicillin and in 1944 becomes the world’s largest producer of the “miracle drug.”

Company Links: Hemophilia Village | BeneFix | Xyntha | Patient Affairs Liaison | Community Facebook Page

Email Patty Eastin

Haelynne Wilde
[haelynne.barron@takeda.com]

Takeda is a leader in rare hematology with more than 70 years of driving innovation for patients and a broad portfolio of treatment options across bleeding disorders including hemophilia and Von Willebrand’s disease. Takeda was founded in 1781.

Company Links: BleedingDisorders.com | HematologySupport.com | VONVENDI | ADVATE | ADYNOVATE

Email Dwayne Whitis

Christine Gaxiola
[cgaxiola@accredo.com]

Accredo is a full-service specialty pharmacy dedicated to caring for people with rare and complex conditions. We deliver specialized pharmacy services and therapy management programs through specialty-trained pharmacists, nurses, reimbursement specialists and patient care representatives. We’re committed to proactively supporting patients, their families and providers, and making medicine more affordable.

Company Links: Company's Hemophilia and other Bleeding Disorders Website | Company's General Website

Email Sabrina Rogers

Jeff Johnson
[jeff.johnson@biomatirxprx.com]

Jeff is a hemophiliac and longtime advocate who has been serving his community in various capacities his entire life. He grew up at hemo summer camp in Oregon, has served on his local chapter board, mentored new families and teens, run bleeding disorders groups on social media, and advocated for healthcare access rights at the local, state, and national levels. He has worked for BioMatrix for five years and loves his role in helping his fellow bleeders to live thriving lives by properly managing their treatment regimens and owning their bleeding disorder. He enjoys his partnership with the team at St Luke’s and is deeply grateful for the role he has been fortunate to play in assisting the bleeding disorders population in Idaho, as well as Oregon and Washington. He lives in Camas, WA with his lovely wife, Stephanie, and their goofy and wild three year old daughter, Lily.

Company Link: Company's General Website

Email Jeff Johnson

Adrienne Smith
[Adrienne.Smith@CVSHealth.com]

At CVS Specialty, we are passionate about serving the Idaho bleeding disorder community and have been doing so for more than 40 years. We have a dedicated CareTeam made up of pharmacists, nurses and educators who have bleeding disorder expertise, standing ready to help you—whether you need guidance on your condition or medication, help navigating the unexpected, or words of encouragement, we’re committed to providing the personalized support you deserve. Please contact Adrienne Smith, Bleeding Disorders Client Relations Executive, CVS Specialty with any questions: 415.531.6933 or adrienne.smith@cvshealth.com

Company Links: Company's General Website | Company's Hemophilia and other Bleeding Disorders Website

Email Adrienne Smith

Stephanie Shea
[stephanie@drugconc.com]

Drugco Health is proud to serve the bleeding disorder community while striving to serve every patient with highly customized personal care. We focus on prevention of long-term complications for our chronic condition patients with education of early warning signs of a bleed, encouragement of self-management in the home, and following the treatment regimen prescribed by their physician. Our interdisciplinary team provides all the factor, infusion supplies and are available 24 hours/ 7 days a week. We have programs that will support every stage of the journey: new diagnosis, transitioning into preschool and elementary, transitioning into middle school and adolescence, transitioning into college and the workforce, aging with hemophilia, inhibitor management, women with bleeding disorders, freedom families (for military families), VWD, caring for the caregivers, mental health and more. Experience the Drugco difference.
Fun Fact: Every employee either has a blood clotting condition themselves or has a child with one!

Company Links: Company's General Website | Company's Facebook Page | Company's Instagram Page

Email Stephanie Shea

Brandon Leong
[brandon.leong@hemabio.com]

Hema Biologics – Louisville Kentucky/US Based Company – SevenFact (Coagulation Factor VIIa Recombinant)
About Brandon: 25 years of experience working in medicine, with the last 12 years working directly with patients.  “Working with and for patients has personally been the most rewarding experience for me!  I love meeting and assisting patients”.
Pacific Northwest Regional Area Manager – Oregon/Washington/Idaho/Alaska/Montana.

Company Link: Company's General Website

Email Brandon Leong

Mackenzie Fly
[mfly@infucarerx.com]

InfuCare Rx provides treatment for hemophilia and bleeding disorders nationwide. Our dedicated team will facilitate and implement best practices that identify InfuCare Rx as a Center of Excellence for hemophilia in the infusion industry. We work together with our care partners to consistently improve delivery and further our commitment to a better future in healthcare for all.  At InfuCare Rx you can expect a specialized approach to your care.

Company Link: Company's General Website

Email Ken Macomber

Leo Tellez
[leo.tellez@medexus.com]

We are giving you an experience that’s anything but ordinary. At Medexus Pharma, our goal is to help people with hemophilia B by providing high-quality, specializes therapies, connecting with people to learn about their needs, and developing empowering programs that enrich peoples’ lives.

Company Link: Company's General Website

Email Leo Tellez

Daini Carlson
[DCarlson@diplomat.com]

Licensed in all 50 states, Optum® Infusion Pharmacy provides high-touch care for patients and families living with hemophilia, von Willebrand disease and related bleeding disorders. This includes support from dedicated patient liaisons, home nursing assistance, insurance support and outcomes monitoring. We also offer specialty programs related to physical therapy, women with bleeding disorders and local educational workshops.

When it comes to your bleeding disorder treatment, related medication and supplies, we know you have a choice. At Optum Infusion Pharmacy, we work hard to earn and keep your trust. Through our national pharmacy locations, field nurses and specialty support staff, we offer the highest level of responsive, personalized care.

Call us at 1-855-855-8754 or visit specialty.optumrx.com/infusion to learn more.

Company Link: Company's Infusion Pharmacy Webpage

Email Daini Carlson